These series of online talks aim to breakdown some of the harder topics we tackle in healthcare. We will do this by bringing together some of the best speakers from across the inherited retinal community. The talks are hosted by Andy Bolan, who is Associate Director, Patient & Medical Community Engagement at ProQR Therapeutics.
Why is the patient perspective in research important?
In this episode we discuss the crucial role of the patient perspective in research and how it really makes an impact from protocol development to clinical trial participation. Both Francesca and Laura bring their own perspectives to the virtual discussion. Francesca is an avid information specialist and Laura is a passionate patient advocate. Both bridge the research and patient community worlds, driving forward the importance of education and awareness in all stages of the clinical development process.