The importance of accessible information during COVID-19 and the challenges that come with isolation. Both Molly (web accessibility consultant) and Rebecca (psychotherapist) live with Usher syndrome, a disease causing combined blindness and deafness.
Molly Watt (25) is becoming a household name in the world of accessibility in technology. She is a young, independent entrepreneur, living with Usher syndrome. Accessibility, she says, is “anything, but black and white".
It has been roughly two years since David Rodman became the Executive Vice-President Research & Development at ProQR to apply his knowledge of study design and genetic diseases on our pipeline for genetic eye diseases.
The work at ProQR would not be possible without the help from patient organizations and foundations. One of the main supporters is the Foundation Fighting Blindness, who generously provided funding for the clinical development of QR-421a.
At a glance, it’s hard to tell Maartje - mother of four - has Usher syndrome. Though she manages her life very well, it took her a long time to get to that point. “I have learned to be optimistic, but the somberness is always there."
New therapies are thoroughly tested to ensure safety and efficacy, but for a company like ProQR, which aims to treat small groups of patients with rare diseases, innovating within the system is essential. Jessica is trying to rethink clinical trials.