ProQR was founded in 2012 by our current CEO, Daniel de Boer. A few years earlier Daniel and his family were faced with the diagnosis of cystic fibrosis in his newborn son, an incurable rare genetic disease. Daniel sought help from experts in the field of drug development and formed ProQR to help people like his son.
ProQR founding story
A personal mission to make a difference
Daniel remains a passionate advocate for rare disease patients and is determined to make a difference in the world. Daniel continues to motivate ProQRians to remind them of the company’s mission and to always act in the interest of patients.
Henri Termeer was a visionary rare disease leader that pioneered rare disease drug development as the CEO of Genzyme. In 2017, Henri unexpectedly passed away. ProQR continues to honor his legacy through our mission of helping people living with rare diseases who have no treatment options.
A dedicated team
The drive and motivation that started the company is alive today. Engagement with the communities we serve is strong and so we work together to address the urgent need for new treatment options.