Community stories and news

  • ProQR update and additional sepofarsen Illuminate trial analyses

    Community news

    ProQR has announced the completion of an in-depth strategic review designed to deliver on our commitment to advance RNA therapies for diseases with high unmet need. We are also sharing additional analyses of the sepofarsen Illuminate trial.

  • Rare Disease Day 2022

    Community news

    On behalf of all ProQRians, happy Rare Disease Day 2022. Both within ProQR and outside, we join the community in raising awareness and trying to generate change for people worldwide living with a rare disease, their families, and supporters.

    28 February 2022 is Rare Disease Day. Rare disease day logo on the top right. Portrait of Maartje living with Usher syndrome on the right. #RareDiseaseDay www.rarediseaseday.org
  • Initial results from QR-1123 Aurora study in adRP

    Community news

    We are pleased to announce an update on our third clinical program QR-1123 and our Phase 1/2, Aurora clinical trial, for autosomal dominant retinitis pigmentosa (adRP) due to the P23H mutation.

    The Aurora logo with a green stamp 'Results' displayed on a desk scattered with a plant, an eye chart, USB stick, and a study design schematic.
  • Managing your inherited retinal disease

    Community news

    Ben Shaberman, Senior Director of Scientific Outreach at the Foundation Fighting Blindness: The diagnosis of a retinal degenerative disease is often overwhelming. But if you or a loved one has been diagnosed with an inherited retinal condition, here are some helpful steps you can take to get on a positive path moving forward.

    A picture of the retina under a microscope
  • Global Usher Syndrome Awareness Day

    Community news

    At ProQR we are getting ready for Usher Syndrome Awareness Day 2021 on September 18th. On this important day and during the month of September we will join the Usher community in raising awareness for this condition. Look to our socials to follow our activities.

    Picture of Maartje with text: September is Usher syndrome awareness month. USH is a rare disease affecting hearing, balance and vision.
  • Poetry in motion, a fireside chat with Mani Iyer

    Community news

    Following on from the recent Spring Eye on the Future Forum, we were lucky enough to catch up with one of our fantastic panelists to speak more about his journey with Usher syndrome.

  • Retina UK: why genes matter

    Community news

    Kate Arkell is Research Development Manager at Retina UK. Retina UK is only UK charity dedicated solely to working for people affected by inherited sight loss. At ProQR we are proud of our work with organizations like Retina UK. These patient organizations help us as a company stay connected to the needs of the communities for whom we are trying to develop RNA therapies.

    Retina UK logo with text: Working for people with inherited sight loss