Community stories and news

  • Eye on the Future Forum 2020 Virtual Fall Summit

    Community news

    Multi-stakeholder platform with experts in clinical development for Leber congenital amaurosis including recent clinical data for sepofarsen, an investigational therapy for LCA10.

    Eye on the Future Forum logo and text 'Virtual Fall 2020' on a black background with yellow and blue geometric eye shapes on the left and right.
  • October 15: White Cane Awareness Day

    Community news

    Since 1964, support has been shown for the blind and visually impaired community by creating the awareness day, White Cane Awareness Day. Read more about what the colors of a cane mean and about the history of this awareness day.

    A woman wearing sunglasses is crossing the street holding a white cane and a guide dog on a leash
  • Meet Naveed Shams, ProQR’s new Chief Scientific Officer

    Community news

    We are pleased to welcome Naveed Shams, MD, PhD to our management team as Chief Scientific Officer. He will be leading research as well as the early clinical development of ProQR's investigational RNA therapies for inherited retinal diseases.

    Naveed Shams
  • In it for the patient

    Community news

    The ProQR family is growing fast and we spoke to the Chief Medical Officer Aniz Girach who joined ProQR in 2019. We asked him about his impression of the company after he joined, as well as the new developments he’s been working on.

    A photo of Aniz Girach
  • Always excited about RNA therapies

    Community news

    He is one of the founders of ProQR, but even long before that Gerard Platenburg was involved in the development of RNA therapies. Even so, after decades of working on them he still gets enthusiastic when talking about RNA.

    A photo of Gerard Platenburg
  • Still going strong / One challenge after another

    Community news

    There are currently around 160 people working at ProQR, but that wasn’t always the case. When Hee Lam Chan joined in 2013, she was only employee number six. As a result, she has seen the company grow and develop.

    A photo of Hee Lam Chan
  • Life around the diagnosis with Leber congenital amaurosis

    Community news

    Laura Steinbusch has a son, 5-year-old Enzo, who has been diagnosed with Leber congenital amaurosis 10, or LCA10. It has made Laura a patient advocate for this disease, and in this interview she explains how the diagnosis has changed her life.

    Photo of Laura Steinbusch and family
  • Serving a tight-knit community

    Community news

    The Netherlands boasts the most prominent patient organization for Usher syndrome. Part of their secret is the passion of the Board. We caught up with president Ivonne Bressers and the Board’s secretary Annouk van Nunen at Annouk’s home in Leiden.

    Photo of Annouk van Nunen and Ivonne Bressers
  • Why is the patient perspective in research important?

    Community news

    Podcast on how the patient's perspective can positively impact research from protocol development to clinical trials. Featuring Francesca (information specialist, living with Leber congenital amaurosis) and Laura (Fighting Blindness Ireland).

    ProQR talks episode 2