Podcast about genetic testing for inherited retinal disease and how getting a genetic diagnosis empowers the IRD community. The guests are Kari Branham (genetic counsellor) and Ben Shaberman (Foundation Fighting Blindness).
Since 1964, support has been shown for the blind and visually impaired community by creating the awareness day, White Cane Awareness Day. Read more about what the colors of a cane mean and about the history of this awareness day.
We are pleased to welcome Naveed Shams, MD, PhD to our management team as Chief Scientific Officer. He will be leading research as well as the early clinical development of ProQR's investigational RNA therapies for inherited retinal diseases.
The ProQR family is growing fast and we spoke to the Chief Medical Officer Aniz Girach who joined ProQR in 2019. We asked him about his impression of the company after he joined, as well as the new developments he’s been working on.
Podcast on how the patient's perspective can positively impact research from protocol development to clinical trials. Featuring Francesca (information specialist, living with Leber congenital amaurosis) and Laura (Fighting Blindness Ireland).
Podcast on accessible information during COVID-19 and the challenges that come with isolation. Both Molly (web accessibility consultant) and Rebecca (psychotherapist) live with Usher syndrome, a condition causing combined blindness and deafness.
It has been roughly two years since David Rodman became the Executive Vice-President Research & Development at ProQR to apply his knowledge of study design and genetic diseases on our pipeline for genetic eye diseases.
The work at ProQR would not be possible without the help from patient organizations and foundations. One of the main supporters is the Foundation Fighting Blindness, who generously provided funding for the clinical development of QR-421a.