Since 1964, support has been shown for the blind and visually impaired community by creating the awareness day, White Cane Awareness Day. Read more about what the colors of a cane mean and about the history of this awareness day.
The ProQR family is growing fast and we spoke to the Chief Medical Officer Aniz Girach who joined ProQR in 2019. We asked him about his impression of the company after he joined, as well as the new developments he’s been working on.
Laura Steinbusch has a son, 5-year-old Enzo, who has been diagnosed with Leber congenital amaurosis 10, or LCA10. It has made Laura a patient advocate for this disease, and in this interview she explains how the diagnosis has changed her life.
Molly Watt (25) is becoming a household name in the world of accessibility in technology. She is a young, independent entrepreneur, living with Usher syndrome. Accessibility, she says, is “anything, but black and white".
The work at ProQR would not be possible without the help from patient organizations and foundations. One of the main supporters is the Foundation Fighting Blindness, who generously provided funding for the clinical development of QR-421a.
At a glance, it’s hard to tell Maartje - mother of four - has Usher syndrome. Though she manages her life very well, it took her a long time to get to that point. “I have learned to be optimistic, but the somberness is always there."
When watching Cristian, Silvia and Edoardo (age 6) and Beatrice (age 2) they look like the ideal, happy family. When asked, the parents insist they are, in many ways. The fact that Beatrice has Leber congenital amaurosis, doesn't change that.