The Netherlands boasts the most prominent patient organization for Usher syndrome. Part of their secret is the passion of the Board. We caught up with president Ivonne Bressers and the Board’s secretary Annouk van Nunen at Annouk’s home in Leiden.
The work at ProQR would not be possible without the help from patient organizations and foundations. One of the main supporters is the Foundation Fighting Blindness, who generously provided funding for the clinical development of QR-421a.