Podcast about genetic testing for inherited retinal disease and how getting a genetic diagnosis empowers the IRD community. The guests are Kari Branham (genetic counsellor) and Ben Shaberman (Foundation Fighting Blindness).
Podcast on how the patient's perspective can positively impact research from protocol development to clinical trials. Featuring Francesca (information specialist, living with Leber congenital amaurosis) and Laura (Fighting Blindness Ireland).
Podcast on accessible information during COVID-19 and the challenges that come with isolation. Both Molly (web accessibility consultant) and Rebecca (psychotherapist) live with Usher syndrome, a condition causing combined blindness and deafness.