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Living with Leber congenital amaurosis 10 - Beatrice

Featured blogs, stories and news

  • ProQR update and additional sepofarsen Illuminate trial analyses

    Community news

    ProQR has announced the completion of an in-depth strategic review designed to deliver on our commitment to advance RNA therapies for diseases with high unmet need. We are also sharing additional analyses of the sepofarsen Illuminate trial.

  • Rare Disease Day 2022

    Community news

    On behalf of all ProQRians, happy Rare Disease Day 2022. Both within ProQR and outside, we join the community in raising awareness and trying to generate change for people worldwide living with a rare disease, their families, and supporters.

    28 February 2022 is Rare Disease Day. Rare disease day logo on the top right. Portrait of Maartje living with Usher syndrome on the right. #RareDiseaseDay www.rarediseaseday.org
  • Managing your inherited retinal disease

    Community news

    Ben Shaberman, Senior Director of Scientific Outreach at the Foundation Fighting Blindness: The diagnosis of a retinal degenerative disease is often overwhelming. But if you or a loved one has been diagnosed with an inherited retinal condition, here are some helpful steps you can take to get on a positive path moving forward.

    A picture of the retina under a microscope

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